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Why Doctors Oppose Self-management
When doctors resist changes to policies or practices that would support patients’ autonomy or voice, they act oppressively. Explanations from patient activists and doctors’ own understanding can lift that oppression, but often only after patients have suffered unnecessarily. Williamson, C. The Emancipation of Patients: a theory whose time has come. British Journal of General Practice, March…
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TypeOneSh*t:Fear & Blame
To people with type 1 who feel obliged to post blaming, shaming and just plain scary pictures on social media: (I’m not going to share the social media image in question as I don’t want to perpetuate the awful message). 1.I know you’re scared of complications, we all are but you need to learn how…
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Emancipating Patients
Just read a great article from the British Journal of General Practice (shout-out to @ipump1 for sharing it with me) and Charlotte Williamson for writing it-kudos. It’s about the emancipation of patients from the oppression of doctors and as the subheading of the article says, it’s “a theory whose time has come”. Firstly, it acknowledges…
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#The Lowdown2019 Hypos!
Diabetes Australia have launched a campaign about hypos, #thelowdown2019 and it’s an opportunity to increase conversation around hypos. Thanks to technology (pump consumables for which I’ m grateful to Australian taxpayers for making them reasonably affordable) and my Private Health Insurance (through which I can get the 10k a pump costs reimbursed) my hypos are…
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Diabetes in Hospital #18ADC Research
Diabetes care amongst hospital inpatients, as I mentioned here, was a topic of focus at the recent Australian Diabetes Congress #18ADC. I have highlighted this as an issue of concern before here and here and the anecdotes of hospitalised people with type 1 make alarming reading. Whilst there was an overwhelming acknowledgement that there is much…
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MAJOR SYDNEY HOSPITAL DENIES DIABETES CARE BECAUSE…
I am still seething about a presentation at Australasian Diabetes Congress 2018, #18adc that discussed the results of a 12 month review of an “Insulin Dose Adjustment Clinic”, in a major teaching hospital in innerEastern-Sydney. This was the least patient-centric, most egregiously substandard research methodology and ethically questionable thing I’ve seen presented. I know these…
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TSlim, YpsoMed, Cellnovo, Roche & Medtronic Choices!!
Yes, that’s right we’ve gone from 1 viable insulin pump choice to now having a choice of 5. I checked out what’s available at the Australian Diabetes Congress (#18ADC), formerly known as ADEA-ADS conference. After the demise of the Animas Vibe, everyone’s been excited about the announcement that the Tslim is coming to Australia. All…
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Diabetes Congress Day 1
So it’s been a busy time here in Adelaide. As part of #DApeoplesvoice at the Australasian Diabetes Congress #18adc I’ve been to two product launches, presented at a symposium on co-design and tweeted my heart out at a full day of sessions and it’s only the first day! So a few of the major things…
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Here’s Looking at You, Retinopathy Reminiscences
Through the window the last rays of sunlight are disappearing, the waiter stops by “Now you can see each other” he says, putting the flickering candle down between the glasses and the pate. There’s a momentary pause in our chatter, “You have no idea how true that is” Maryanne responds. I nod and toast my…
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When Language Causes Doctors to Behave Badly!
Language matters is not about being polite or swapping one word for another that conveys the same concept. The reason why people with diabetes get upset and angry about words is that they betray flawed assumptions, presumptions and inaccuracies NOT because they’ve hurt out feelings. We may get upset about rudeness, incivility and being…